Actor Colin Farrell has opened a long -term care center about the difficult decision to transfer his son James, who has Angleman’s syndrome.
The star of the Oscar nominee of Banshees of IniserinWho recently won a Golden Globe for the HBO series PenguinHe has previously spoken of his son’s journey with this rare disorder, which delays growth and affects the nervous system.
In an interview this week, the 48 -year -old actress revealed that she and her former colleague Kim Bordhneva are discovering options to find a long -term home for James, 21, if anything happened to them.
Parents are afraid that James will become a government sector if both of his carers are ill or killed.
He said Magazine Magazine: “We want him to find a place where he can live a perfect and happy life, where the feeling of relevance is.”
Farrell also revealed that he was starting to work Colin Farrell Foundation Supporting individuals and families with intellectual disabilities through attorney, education and innovative programs to respect his son who is non -verbal.
What is Angelman Syndrome?
Angelman’s syndrome is a rare genetic disease that affects the nervous system and causes severe physical disabilities and learning, NHS reports.
The genetic test is diagnosed to see if the chromosomes or parts of the chromosomes are lost and seek to change the Ube3A gene.
Those with Angelman syndrome probably need support throughout their lives.
What are the characteristics of Angleman’s syndrome?
The child with Angelman syndrome shows a delay in growth at six to 12 months and may not start sitting or sitting or sitting at the same time as other children.
Later, they may fight speech and have trouble walking due to issues of balance and coordination. Farrell had previously revealed that when his son James took his first steps shortly before his fourth birth, he shed tears.
Some children may also experience seizures.
The syndrome is also usually associated with several distinct behavior, although the child may not show them all.
These include frequent laughs and smiles, easily exciting, restless, having a short distance, having trouble sleeping and fascinating water.
How do you manage Angleman’s syndrome?
Anti -epileptic drugs can be used to help control seizures in children who experience them.
Physiotherapy can also help with mobility and coordination problems, and as people with Angelman Syndrome become larger, preventing joint tightening.
Communication treatment can also communicate to those who are non -verbal through the language of sign, macatone and other systems.
