The British government has also announced a plan to improve the care of people with mered encephalitis, as well as chronic fatigue syndrome (ME/CFS) to pay hundreds of thousands of people with the disease often caused by cracks.
According to the NHS website, Me/CFS is a long -term situation that can affect different parts of the body and the cause is unknown.
The Ministry of Health and Social Care acknowledged that many people with this condition are currently trying to access appropriate care, saying the new program includes new training and investment in research.
While many welcome the move, this is poor. To eliminate some of the common myths around it, we were in contact with Tracy Maggit, a southern Grandma, near Sheffield, through the ME Association. He shared his personal experience about living with me/cfs.
When did you first notice My symptoms/ cfs?
Tracy, now 54 years old, began ME/CFS symptoms for the first time 11 years ago, while recovering from viral infection.
“In August 2014, I had a viral infection and experienced a lot of pain, pelvic pain and just a general feeling of being unpleasant and lacking energy,” Tracy recalls. “I still had a slow energy and after a few months I had a regular symptom of colds,” he said.
“I had already prepared evening foods from the beginning, as I loved cooking, and one of the first things I realized was that I couldn’t do it every night. I started doing less and less and started to put ready -made food or work that didn’t need to be prepared.”
After months of gradual reduction of energy and increased symptoms, Tracy first raised his concerns with his general practitioner in January 2015.
“They said it seems like a post -virus fatigue syndrome, and they said that it will eventually be easy, or it could become me,” says Tracy. “I had heard from me that I knew when I was younger, they called it” the yuopian flu “, but I didn’t know anything about it.
When was it officially recognized?
Tracy was officially diagnosed with ME/CFS in January 2018, but had previously increased medicine from the role of his associate biomedical research at the University of Sheffield at that time, as his symptoms had progressed from mild to severe.
Tracy shares: “I realized that I would be good on Monday and Tuesday morning, but I start getting a cold symptoms until Tuesday afternoon.” “I was constantly blowing my nose, sneezing and really feeling lethargic.”
He then got an infection and, after returning to work after a two -month leave period, could not even manage half of his previous work.
“I arrive on Monday, do a few hours, and I get crushed until I get home and feel worse the next day, so I had to finish the job I loved,” Tracy says.
“This is a complicated disease that I understand.
How do you feel the feeling of fatigue you experience?
Unlike natural fatigue, fatigue in ME/CFS does not rest sufficiently. “I experience different levels of muscle fatigue, constantly changing up to date and even hours,” explains Tracy. “If I do a move over and over, or if I have to keep my arm for something, it gets tired very quickly.
“The best way to describe it is that my body and its cells do not only produce enough energy to operate in the first place. Every time I overdo it, I experience post -charged weakness (PEM), which is an increase in my usual symptoms, plus further symptoms with further reduction in energy levels.”
Symptoms are the most severe during what he referred to as “accident”.
Tracy explains: “In my opinion, an accident when my body is turned off. It is like a coma, where I feel paralyzed, but I also have no awareness of what is happening.” “It is like the lights are turning off. I start to be aware after an hour or more and eventually I can move my eyes and then move the ends of my fingers and fingers and gradually move parts of my body,” he said.
“Regularity of accidents depends on what I have to do and they are different in the duration of the shelf life.”
I/CFS how mentally affect you?
Although Tracy tries to stay positive, it is hard to see in social events.
“I’m a really positive person, so I’m lucky in this respect,” says Grandma Six. “I am not someone to get down about things, but you lose a lot of things in this way, like when I had to stop socializing and forced to stop working,” he said.
“Now, what affects me most is that, because I am at home, I can’t go out with my husband and do things. He can go out and do his activities, go to family events.Wish you know more about me/CFS?
“I wish people looked at it in a different way and consider that every process would affect the body,” says Tracy. “Eating, talking, using your brain, digestion of all energy consumes all energy. I wish people know that energy may take them to run one mile, it can be as much as the energy that gives me a meal.”
In addition, he wants to emphasize that I’m not depression.
Tracy reflects: “It’s not like depression at all. I have a lot of passion, which is probably hindered because I often go beyond my ability because I’m eager and about everything.” “I think I very hard patients try to do all the things and enjoy other people, but if someone tells me that he can’t do anything, they really can’t do it.”
You can get more information and resources about these conditions from reputable organizations such as NHS, Action for Me and the ME Society.