A couple from Nottinghamshire, whose 14 -month -old died unexpectedly, hopes to create a “lasting heritage” for their daughter.
Enya Burgess, 29, and 28 -year -old Scott Stanley from Mansfield, on May 7 this year, when they found “stiff” and “blue”, their young daughter, Lily, woke up.
Despite the unpleasant calls for the ambulance, the Lily was pronounced dead, and the cause was later recognized as a sudden infinite death in childhood (SUDC) and abandoned her parents with “no response”.
The couple claims that after Lily was taken to the local hospital for review, they were left in a crowded A&E waiting room, which was “beaten” while processing them.
The experience was impressive for the couple, which also claims that there is no continuous advice or support from the hospital and there is no dedicated room in place to be sad.
Without the kindness of two hospital staff, ENYA and Scott felt they would have “nothing” – and they would launch a Gofundme page to collect money to improve the site’s disposal services as a way to help other families through “unthinkable”.
“Tomorrow is not guaranteed, you can cherish any moment,” Ania said.
“It was just a normal Tuesday for us and the next day our world was broken overnight,” he said.
“We want to make these changes to create a lasting legacy for its lily and help parents and other families to pass unimaginable.”
“Every hospital must provide these services when losing a child,” Scott added.
“You need help and support to process news and a private place to do this.”
ENYA and their daughter’s scott, Lily described it that she had no predecessor, “very lovely and very cheek”.
“He was very compassionate and liked to share a lot of things, he had a big heart,” Scott said.
He said that on the morning of May 7th when he got up for work is a morning.
“I went downstairs, made the lion (Lily-An), and I went to lift him up and get ready for kindergarten … he was on his front and he was blue,” Scott said.
The couple called the ambulance while ENYA said he escaped from the house to scream for help. One of their neighbors, a non -conscientious police officer, was able to start the CPR office to Lily.
ENYA said it was “madness” because both police and ambulances arrived once before the couple was told that Lily died, one day under 14 months.
Lily it was taken to King’s Mill Hospital in Nottinghamshire for further investigation, while ENYA and Scott are behind-but they claim to sit in the A&E waiting room after their recent loss.
“It was a beat-we were sitting there for half an hour and sitting around other people and wondering what the hell was happening,” Ania said.
The couple said they were met by doctors before being moved to a side room and asked the health of Lily.
“They made some of the initial checks on him and confirmed that there was no sign of the struggle, which there is no clear reason for his forgiveness,” Ania said.
From there, ENYA claims that he and Scott have been moved to another room next to the children’s A&E waiting room “next to”.
“It was literally just a dark, dark room behind some toilets and we could hear everything,” Ania said.
“We were in the shock, according to what we were passing by.
In the following days, Eneia and Scott said they wanted “as much time as possible with Lily-An” while she was in the hospital in the hospital-but they claim to be aware of the lack of support to them at King’s Mill Hospital.
The couple claims that they have not been advice or support from the dedicated team and there is no specific area where they can process their losses privately.
They also claim that while supporting the frustration in the hospital, it is only for those who died at a given age-and Lily was very old to receive the service.
ENYA and Scott said they are “lucky” but support an A&E nurse and a church in the hospital capable of accompanying the couple on a mission and helping them at their difficult time – often staying late in their work hours.
“We’ve lost our daughter, but fortunately, we had two good people there to help us,” Scott said.
“Not all families want to get it and without them, we didn’t have anything – we were just lucky.”
On May 19, Lily was transferred to the Great Ormond Street Hospital for children in London, where post -death examination was taken.
On June 23, ENYA said that his daughter’s death is officially governed as an unbounded death in childhood (SUDC).
According to SUDC UK, a charity dedicated to research and support is affected every year by SUDC in the UK, which often fall asleep and never wake up.
ENYA, Scott and their loved ones held a funeral for Lily on June 6-though they said they had not processed her death.
“This is hard because we have no answer, there is no reason for him to die,” said Enya.
Enya and Scott motivated their experience, with the aim of registering a support team for everyone at King’s Mill Hospital, as well as creating a dedicated Bereavement set on this site, set up a GOFUNDME page – over £ 10,000 for aims to £ 10,000.
“My goal is to provide this support to help other families in the future,” Ania said.
“On behalf of trust, I would like to extend my condolences to the Lily-Ann family at this extremely difficult time,” said Dr. Simon Roo, a senior medical director at Sherwood Forest Hospitals.
“While we have a dedicated team of daunting and helping employees help to provide advice, guidance and memory for families who have experienced anxiety, the team does not provide continuous support such as consulting,” he said.
“Like other trust across the country, deprived families are referred to local and national organizations for advice and support,” he said.
“We are committed to improving our services and continue to work with our local and regional partners to consider possible developments in support of the frustration,” he said.
“We are grateful to the Lily family-that we want to improve the experiences of others over time, and we will continue to work with them to find a suitable way to support our scary services as a lasting heritage for their daughter.”
For more information, visit the Gofundme Enya and Scott page.
